It's All About The Kids!We feel very fortunate to have become friends with a group of some of the most charming and amazing kids. They all have osteogenesis imperfecta, a rare disorder that affects between 20,000 - 50,000 people in the US. But as you'll read here, these kids don't let their brittle bones prevent them from accomplishing great things! We would like to introduce you to a few of our good friends. | |
| CHRISTINA NELSON, recently graduated from the University of California Riverside. She loves to read and write, and plans a career as an author of fantasy books. Christina is especially grateful to the SCPI for funding the research that has helped her eliminate some of her physical challenges. With this new treatment she says she is getting stronger, experiencing fewer fractures, is able to sit and breath better. Thank you, SCPI! |
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 | ROB PARKE I was diagnosed with Ostoegenesis Imperfecta at birth and have since had over 80 fractures and 19 surgeries, with titanium steel in my spine, hips, femurs and tibias. I try not to let this slow me down, and maintain my wheelchair is just for mobility! I just completed my first year at USC, living on campus and maintaining a 4.0 in the Honors Engineering program. My major is computer/electrical engineering, with an emphasis on programming and a minor in multi-media. This summer I am interning at Tait and Associates and taking a class in computer animation. I have enjoyed being involved in the SCPI Charity Benefit since I pitched the value of investing in OI to the first committee in 1986. I send my heartfelt thanks to all the people that have helped with the Charity Benefit over these last fifteen years. You guys make this happen! |
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TREY GLAUSER Trey Glauser was born with Osteogenesis Imperfecta, and throughout his lifetime has experienced over 100 major fractures, and countless minor ones. He has undergone nine orthopedic surgeries, two spinal fusions, and he uses a wheelchair for mobility. Trey graduates with a degree in Visual Communications in July 2008. With the computer is his partner as he has created numerous commercial websites and hopes to launch a career in video editing. His positive outlook and magnetic personality was once described by his physician as, "Trey is a million dollar kid in a ten cent body." |  |
| ELIZABETH LOBATO Hi, my name is Elizabeth Lobato. I have Osteogenesis Imperfecta Type III, most commonly known as the brittle bone disease. I am the only one out of six in my family that has OI. At first I was not able to do much, but since I have had treatment, I am doing many new and exciting things! I can now get on my hands and knees and crawl. I am also able to pull myself up to a standing position. |
| STEVEN ROBERTS Usually children with OI are restricted in their ability to exercise or play as other kids can, however, one young man is making an exception. Four year old Steven Roberts, from Vancouver, Washington is somewhat of a local celebrity. He has appeared on numerous television news shows that feature him in his role as golfer extraordinaire! We were privileged to have Steven join us at our 2000 SCPI Tournament to demonstrate his golfing skills, and to help raise money for OIF. |  |
 | JONATHAN PHELPS is 16 months old and has OI Type IV. He loves to smile and wave hello to everyone. Some of his favorites are balls, dogs and anything to do with Blue's Clues. He underwent rodding surgery on both femurs early this summer (2001) and he is so happy to be out of a cast and crawling everywhere. Jonathan is just a very happy guy and can't help but make those around him just as happy too! |
NICOLE HOFHINE
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